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Representative Adam Anderson to Present $5 Million to FSU Health at Pediatric Rare Disease Symposium

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TALLAHASSEE, Fla. (FNN) – Florida State University’s Institute for Pediatric Rare Diseases at FSU Health will host the Pediatric Rare Disease Symposium on Monday, October 7, 2024, from 9 AM to 4 PM Eastern, bringing together the nation’s leading experts in pediatric rare disease research. The symposium aims to foster collaboration between researchers, healthcare professionals, and policymakers to advance treatment and research for pediatric rare diseases.

State Representative Adam Anderson will kick off the event with special opening remarks, where he will present a $5 million funding check to support the Institute for Pediatric Rare Diseases at FSU Health.

Florida State University is at the forefront of pediatric rare disease research. This symposium will be the catalyst for a collaborative nationwide effort, ensuring that institutions share the best knowledge and practices to bring new cures and hope to millions of children and their families,” said Rep. Anderson.

Other highlights of the event include:

  • Keynote address by Dr. Terence R. Flotte, Executive Deputy Chancellor and Provost at UMass Chan Medical School
  • Presentations from experts representing NIH, Harvard, Stanford, University of Florida, University of Miami, and Nicklaus Children’s Health System
  • Industry roundtable focusing on the intersection of industry, healthcare, and academia in advancing pediatric rare disease research

What to Bring:

  • Relevant research materials or presentations
  • Questions for the panelists and speakers

Note: The symposium is focused exclusively on pediatric rare disease research. For more information or to register, visit med.fsu.edu/iprd/.

FSUHealth, RareDiseaseResearch, PediatricCare, MedicalBreakthroughs, FSUSymposium

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North Florida News

Jaguars Maul Panthers in Travis Hunter’s Debut

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Photo credit: Mike Brodsky, Florida National News

JACKSONVILLE, Fla. (FNN) – The Jacksonville Jaguars (1-0) beat the Carolina Panthers (0-1) by a score of 26-10 at EverBank Stadium. Today’s game marked the debut of Heisman Trophy winner, Travis Hunter, who played on both sides of the ball for the Jaguars, as a wide receiver and cornerback. It was also the first time Jaguars RB Travis Etienne Jr. played against his brother, Panthers rookie RB Trevor Etienne, who was drafted in the fourth round after playing two seasons for the Florida Gators and one for the Georgia Bulldogs.

Heisman Trophy winner Travis Hunter makes his debut with the Jaguars. (Photo: Mike Brodsky, Florida National News)

The Jaguars scored on their first drive of the season, with K Cam Little’s 35 yard field goal. But the Panthers responded with K Ryan Fitzgerald’s 48 yard field goal, tying the game at 3-3, which was the score at the end of the first quarter.

Jaguars QB Trevor Lawrence’s 6 yard touchdown pass to TE Hunter Long, followed by Cam Little’s extra point, put the Jags ahead 10-3. It was Lawrence’s fifth consecutive open week with a passing touchdown. Just after that play, the game was officially delayed for about an hour due to severe weather in the area. Players and fans were moved to covered areas as a precaution. Later in the quarter after action resumed, WR Brian Thomas Jr. ran for a 9 yard touchdown. Little added the XP and followed shortly after with a 47 yard field goal just before halftime, to put the Jags up 20-3.

The game was delayed due to severe weather in Jacksonville. (Photo credit: Mike Brodsky, Florida National News)

In the third quarter, the Jaguars succeeded in stopping the Panthers’ drive, taking over the ball on their 6 yard line. But neither team scored any points in the quarter.

Midway through the fourth, Cam Little’s 36 yard field goal put the Jags ahead 23-3. But the Panthers responded with a 27 yard pass from QB Bryce Young to RB Chuba Hubbard, followed by Brian Fitzgerald’s XP, narrowing their deficit to 23-10. After the two minute warning, Cam Little’s 28 yard field goal put the Jags up 26-10. A late scoring drive by the Panthers ended with an interception of Bryce Young’s pass intended for RB Rico Dowdle by Jaguars CB Jourdan Lewis, ending the game at 26-10.

Trevor Lawrence finished with 178 yards and one TD. Travis Etienne Jr. led the Jaguars’ rushing with 142 yards. Brenton Strange was the leading receiver with 59 yards. Today’s attendance was 59,957.

The Jacksonville Jaguars are in the process of renovating their stadium. Many areas of EverBank Stadium were blocked off for construction during today’s game. The project will continue while the Jaguars continue to play at home this season and next. In 2027, the team will play at either Orlando or Gainesville to complete the transformation. For more details on Jacksonville’s Stadium Of The Future, which opens in 2028, visit https://www.jaguars.com/stadiumofthefuture/.

The Jaguars head to Cincinnati to face the Bengals on Sunday, 9/14. Kickoff is scheduled for 1:00 p.m. Be sure to follow www.FloridaNationalNews.com for more.

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North Florida News

Jaguars Foundation and Florida Blue Host 3rd Annual Community Day in Jacksonville

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JACKSONVILLE, Fla. (FNN SPORTS) – Hundreds of volunteers from Jacksonville’s business community will join forces with the Jaguars Foundation for the 3rd Annual Community Day presented by Florida Blue on Friday, August 8. The event will focus on assembling care packages to benefit thousands of local children, families, and military service members.

The event will take place at Toon Town Pickleball and kick off with remarks from representatives of the Jaguars Foundation and Florida Blue. Volunteers from major companies including Florida Blue, CSX, FIS, Regency Centers, and JEA will help prepare care packages for several nonprofit organizations: Feeding Northeast Florida, St. Michael’s Soldiers, Changing Homelessness, Communities In Schools, and residents of the OUTEAST community.

The morning will wrap up with entertainment, including a live DJ, tailgate games, lunch, and photo opportunities featuring Jaguars mascot Jaxson de Ville and Jaguars Legends Josh Scobee and Aaron Beasley.

Event Details:
WHAT: 3rd Annual Community Day presented by Florida Blue – Care Package Assembly for Jacksonville-area nonprofits
WHEN: Friday, August 8 | 9:30 a.m. – 12:00 p.m.
WHERE: Toon Town Pickleball, 1726 E. Church St., Jacksonville, FL 32202
WHO: Volunteers from local businesses, Jaguars Foundation staff, Florida Blue representatives, and Jaguars Legends

____________________________________________________________________

Staff | Sports@FloridaNationalNews.com

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Florida Lawmakers Condemn Politicization of University Presidential Appointments

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Florida Lawmakers Condemn Politicization of University Presidential Appointments

MIAMI, FLORIDA (FNN NEWS) — Three Florida state legislators have issued a joint statement condemning what they describe as the growing politicization of presidential appointments within the State University System of Florida.

THE ISSUE AT HAND

In a forceful message released on Monday, Representative Ashley V. Gantt (D-Miami), Representative Michele K. Rayner (D-St. Petersburg), and Representative LaVon Bracy Davis (D-Ocoee) voiced alarm over a pattern of politically motivated leadership appointments at several state universities, including Florida A&M University (FAMU), New College of Florida, Florida International University (FIU), and the University of Florida (UF).

“We are deeply disturbed by the troubling pattern emerging in the selection and appointment of university presidents across our state,” the legislators stated. “These critical leadership decisions appear to be driven more by political ideology than by a commitment to academic excellence, equity, and the long-term success of our institutions.”

SPECIFIC CONCERNS: FAMU & UF

The lawmakers pointed to the rejection of Santa Ono as a finalist for the presidency at UF, attributing the decision to his support for Diversity, Equity, and Inclusion (DEI) initiatives — a disqualifier they assert should be viewed as a leadership strength.

They also criticized the recent appointment of Marva Johnson as FAMU’s president, which, they claim, ignored student and alumni voices while prioritizing political alliances and boardroom deals. “There is no regard for student or alumni opinion,” the statement reads. “The focus centered on shutting student protests down rather than listening.”

The legislators drew parallels to the controversial appointment of Ben Sasse at UF, which they argue reflected a similar pattern of politically charged selections, undermining the university’s reputation and academic rigor.

A BROADER TREND OF POLITICAL OVERREACH

“This is not about individual personalities; it’s about the process,” the lawmakers declared. “A process that sidesteps meaningful engagement and leans into political expediency over shared governance is a betrayal of the trust our community places in its leadership.”

LEGISLATIVE EFFORTS FOR TRANSPARENCY

The joint statement also highlighted recent legislative efforts to reform the presidential selection process. The Florida House passed HB 1321, a bill introduced by Representative Michelle Salzman, aimed at enhancing transparency and requiring participation from students, faculty, and administration in presidential search committees. However, Governor Ron DeSantis opposed the bill, refusing to sign it into law and labeling it ‘treacherous.’

A CALL TO ACTION

The legislators emphasized that FAMU is more than a boardroom decision. “It is a cultural institution, a beacon of hope, and a sacred space for generations of Black excellence,” the statement read. “To handle its future with anything less than transparency and reverence is not only wrong — it’s dangerous.”

They concluded by reaffirming their commitment to advocate for accountability, transparency, and academic freedom throughout Florida’s higher education system.

“Our students deserve leadership chosen for their vision, experience, and dedication to education — not their political alignment,” the lawmakers declared. “Our future depends on it.”

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